Nick Blacket, who lived with a rare condition called Wolf Hirschhorn Syndrome, passed away on December 29. PIC: Facebook
Nick Blacket, who lived with a rare condition called Wolf Hirschhorn Syndrome, passed away on December 29. PIC: Facebook

St George community remembers ‘beautiful’ Nick

Nick Blacket has been remembered by people from St George and beyond as a ‘very special person’ and a ‘wonderful man’ who touched so many hearts across Australia.

The 25-year-old changed the lives of countless children with disabilities across Australia as the face of the influential charity Help Kids Like Nick.

Nick lived with a rare condition called Wolf Hirschhorn Syndrome, which is estimated to affect one in 50,000 people and causes symptoms like intellectual disability, ataxia, distinct facial features, and low muscle mass.

It is caused by deletions in chromosome 4 and symptoms vary from person to person.

His father David, mother Alison, and brothers Loxlee and Jock run the Riversands Winery in St George, and established the charity Help Kids Like Nick to provide support, grants, and assistance to people and families with Wolf Hirschhorn Syndrome, as well as charity events to raise money.

Nick’s mother Alison Blacket announced his passing on the charity’s Facebook page on January 1, and many people touched by Nick’s journey have been mourning the loss of the young man.

The post has so far received kind and supportive messages, and over 100 reactions.

“He left us on Tuesday morning, December 29 in hospital, surrounded by love, music and laughter,” Mrs Blackett announced on the page.

“Nick shone his light so brightly and bravely, and a little cheekily, through the many highs and lows of his 25 years with us.

“He was the inspiration for the McLennan and Blacket families to form this charity to support our young children and adults with Wolf Hirschhorn Syndrome in Australia.

“His spirit has touched many hearts and we will miss him immensely.”

Anyone who wants to give a donation to Help Kids Like Nick can do so on their website here.


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